{"id":345,"date":"2021-11-27T16:10:54","date_gmt":"2021-11-27T15:10:54","guid":{"rendered":"https:\/\/uneetincellepourisaure.com\/who-are-we\/"},"modified":"2021-12-13T12:16:08","modified_gmt":"2021-12-13T11:16:08","slug":"who-are-we","status":"publish","type":"page","link":"https:\/\/uneetincellepourisaure.com\/en\/who-are-we\/","title":{"rendered":"Who are we ?"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"background-color: #f4d0d0;background-position: center center;background-repeat: no-repeat;border-width: 0px 0px 0px 0px;border-color:#e2e2e2;border-style:solid;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-stretch fusion-flex-justify-content-center\" style=\"max-width:1497.6px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_2_3 2_3 fusion-flex-column etincelles\"><div class=\"fusion-column-wrapper fusion-flex-justify-content-center fusion-content-layout-column\" style=\"background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;padding: 0px 0px 0px 0px;\"><style type=\"text\/css\">@media only screen and (max-width:1024px) {.fusion-title.fusion-title-1{margin-top:10px!important; margin-right:0px!important;margin-bottom:15px!important;margin-left:0px!important;}}@media only screen and (max-width:640px) {.fusion-title.fusion-title-1{margin-top:10px!important; margin-right:0px!important;margin-bottom:10px!important; margin-left:0px!important;}}<\/style><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"margin-top:10px;margin-right:0px;margin-bottom:15px;margin-left:0px;\"><h2 class=\"title-heading-left\" style=\"margin:0;\">Qui sommes-nous<\/h2><\/div><\/div><style type=\"text\/css\">.fusion-body .fusion-builder-column-0{width:66.666666666667% !important;margin-top : 0px;margin-bottom : 20px;}.fusion-builder-column-0 > .fusion-column-wrapper {padding-top : 0px !important;padding-right : 0px !important;margin-right : 2.88%;padding-bottom : 0px !important;padding-left : 0px !important;margin-left : 2.88%;}@media only screen and (max-width:1024px) {.fusion-body .fusion-builder-column-0{width:66.666666666667% !important;order : 0;}.fusion-builder-column-0 > .fusion-column-wrapper {margin-right : 2.88%;margin-left : 2.88%;}}@media only screen and (max-width:640px) {.fusion-body .fusion-builder-column-0{width:100% !important;order : 0;}.fusion-builder-column-0 > .fusion-column-wrapper {margin-right : 1.92%;margin-left : 1.92%;}}<\/style><\/div><\/div><style type=\"text\/css\">.fusion-body .fusion-flex-container.fusion-builder-row-1{ padding-top : 60px;margin-top : 0px;padding-right : 0px;padding-bottom : 40px;margin-bottom : 0px;padding-left : 0px;}<\/style><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"background-color: rgba(255,255,255,0);background-position: center center;background-repeat: no-repeat;border-width: 0px 0px 0px 0px;border-color:#e2e2e2;border-style:solid;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-stretch\" style=\"max-width:1497.6px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column etincelles\"><div class=\"fusion-column-wrapper fusion-flex-justify-content-center fusion-content-layout-column\" style=\"background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;padding: 0px 0px 0px 0px;\"><style type=\"text\/css\">@media only screen and (max-width:1024px) {.fusion-title.fusion-title-2{margin-top:10px!important; margin-right:0px!important;margin-bottom:15px!important;margin-left:0px!important;}}@media only screen and (max-width:640px) {.fusion-title.fusion-title-2{margin-top:10px!important; margin-right:0px!important;margin-bottom:10px!important; margin-left:0px!important;}}<\/style><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"margin-top:10px;margin-right:0px;margin-bottom:15px;margin-left:0px;\"><h2 class=\"title-heading-left\" style=\"margin:0;\">Une \u00e9tincelle pour Isaure est un fonds de dotation qui a \u00e9t\u00e9 cr\u00e9\u00e9 en avril 2021 <em>( d\u00e9claration au JO le 18\/03\/2021, N\u00b0 de parution : 20210015 )<\/em><b> <\/b>ayant pour objet de soutenir directement et indirectement les projets de recherches scientifiques et ses applications cliniques pour le traitement des syndromes de l&#8217;\u00e9pilepsie li\u00e9e au g\u00e8ne KCNT1. Cette pathologie touche plusieurs dizaines de patients en France et quelques milliers dans le monde.<\/h2><\/div><div class=\"fusion-text fusion-text-1\"><p>En l&#8217;\u00e9tat actuel, la recherche m\u00e9dicale mobilise des \u00e9quipes aussi bien fran\u00e7aises qu&#8217;internationales dont les travaux n\u00e9cessitent des financements importants.<\/p>\n<p>Le Fonds a pour objet d&#8217;intervenir tant dans le champ de la recherche fondamentale que de permettre l&#8217;acc\u00e8s aux soins de patients cibles atteint de la pathologie.<\/p>\n<p>Dans le cadre de la r\u00e9alisation de son objet, le Fonds :<\/p>\n<p>&#8211; s&#8217;attache les avis d&#8217;un comit\u00e9 scientifique pour toutes les questions m\u00e9dicales;<\/p>\n<p>&#8211; participe au financement de structures ou de personnes ou de projets d&#8217;int\u00e9r\u00eat g\u00e9n\u00e9ral dans le domaine de la recherche scientifique notamment sur les pathologies relatives au g\u00e8ne KCNT1;<\/p>\n<p>&#8211; participe au financement en France et\/ou \u00e0 l&#8217;\u00e9tranger de la prise en charge des essais cliniques pour les enfants fran\u00e7ais atteints des syndromes de l&#8217;\u00e9pilepsie li\u00e9e au g\u00e8ne KCNT1.<\/p>\n<p>Le conseil d\u2019administration est compos\u00e9 de :<\/p>\n<ul>\n<li>Pr\u00e9sident : Fr\u00e9d\u00e9ric de PARISOT (dirigeant de soci\u00e9t\u00e9)<\/li>\n<li>Vice-Pr\u00e9sident : Henri-Charles TH\u00c9LU (avocat)<\/li>\n<li>Tr\u00e9sorier : Nicolas M\u00c9RIGOT (dirigeant de soci\u00e9t\u00e9)<\/li>\n<li>Secr\u00e9taire : Bertrand FAUVETTE (dirigeant de soci\u00e9t\u00e9)<\/li>\n<\/ul>\n<\/div><\/div><style type=\"text\/css\">.fusion-body .fusion-builder-column-1{width:100% !important;margin-top : 0px;margin-bottom : 20px;}.fusion-builder-column-1 > .fusion-column-wrapper {padding-top : 0px !important;padding-right : 0px !important;margin-right : 1.92%;padding-bottom : 0px !important;padding-left : 0px !important;margin-left : 1.92%;}@media only screen and (max-width:1024px) {.fusion-body .fusion-builder-column-1{width:100% !important;order : 0;}.fusion-builder-column-1 > .fusion-column-wrapper {margin-right : 1.92%;margin-left : 1.92%;}}@media only screen and (max-width:640px) {.fusion-body .fusion-builder-column-1{width:100% !important;order : 0;}.fusion-builder-column-1 > .fusion-column-wrapper {margin-right : 1.92%;margin-left : 1.92%;}}<\/style><\/div><\/div><style type=\"text\/css\">.fusion-body .fusion-flex-container.fusion-builder-row-2{ padding-top : 0px;margin-top : 60px;padding-right : 0px;padding-bottom : 0px;margin-bottom : 20px;padding-left : 0px;}<\/style><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"footnotes":""},"class_list":["post-345","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/pages\/345","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/comments?post=345"}],"version-history":[{"count":17,"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/pages\/345\/revisions"}],"predecessor-version":[{"id":505,"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/pages\/345\/revisions\/505"}],"wp:attachment":[{"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/media?parent=345"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}