{"id":466,"date":"2021-12-13T03:43:19","date_gmt":"2021-12-13T02:43:19","guid":{"rendered":"https:\/\/uneetincellepourisaure.com\/?page_id=466"},"modified":"2021-12-13T12:08:36","modified_gmt":"2021-12-13T11:08:36","slug":"who-are-we-2","status":"publish","type":"page","link":"https:\/\/uneetincellepourisaure.com\/en\/who-are-we-2\/","title":{"rendered":"Who are we ?"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"background-color: #f4d0d0;background-position: center center;background-repeat: no-repeat;border-width: 0px 0px 0px 0px;border-color:#e2e2e2;border-style:solid;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-stretch fusion-flex-justify-content-center\" style=\"max-width:1497.6px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_2_3 2_3 fusion-flex-column etincelles\"><div class=\"fusion-column-wrapper fusion-flex-justify-content-center fusion-content-layout-column\" style=\"background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;padding: 0px 0px 0px 0px;\"><style type=\"text\/css\">@media only screen and (max-width:1024px) {.fusion-title.fusion-title-1{margin-top:10px!important; margin-right:0px!important;margin-bottom:15px!important;margin-left:0px!important;}}@media only screen and (max-width:640px) {.fusion-title.fusion-title-1{margin-top:10px!important; margin-right:0px!important;margin-bottom:10px!important; margin-left:0px!important;}}<\/style><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"margin-top:10px;margin-right:0px;margin-bottom:15px;margin-left:0px;\"><h2 class=\"title-heading-left\" style=\"margin:0;\">WHO ARE WE ?<\/h2><\/div><\/div><style type=\"text\/css\">.fusion-body .fusion-builder-column-0{width:66.666666666667% !important;margin-top : 0px;margin-bottom : 20px;}.fusion-builder-column-0 > .fusion-column-wrapper {padding-top : 0px !important;padding-right : 0px !important;margin-right : 2.88%;padding-bottom : 0px !important;padding-left : 0px !important;margin-left : 2.88%;}@media only screen and (max-width:1024px) {.fusion-body .fusion-builder-column-0{width:66.666666666667% !important;order : 0;}.fusion-builder-column-0 > .fusion-column-wrapper {margin-right : 2.88%;margin-left : 2.88%;}}@media only screen and (max-width:640px) {.fusion-body .fusion-builder-column-0{width:100% !important;order : 0;}.fusion-builder-column-0 > .fusion-column-wrapper {margin-right : 1.92%;margin-left : 1.92%;}}<\/style><\/div><\/div><style type=\"text\/css\">.fusion-body .fusion-flex-container.fusion-builder-row-1{ padding-top : 60px;margin-top : 0px;padding-right : 0px;padding-bottom : 40px;margin-bottom : 0px;padding-left : 0px;}<\/style><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"background-color: rgba(255,255,255,0);background-position: center center;background-repeat: no-repeat;border-width: 0px 0px 0px 0px;border-color:#e2e2e2;border-style:solid;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-stretch\" style=\"max-width:1497.6px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column etincelles\"><div class=\"fusion-column-wrapper fusion-flex-justify-content-center fusion-content-layout-column\" style=\"background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;padding: 0px 0px 0px 0px;\"><style type=\"text\/css\">@media only screen and (max-width:1024px) {.fusion-title.fusion-title-2{margin-top:10px!important; margin-right:0px!important;margin-bottom:15px!important;margin-left:0px!important;}}@media only screen and (max-width:640px) {.fusion-title.fusion-title-2{margin-top:10px!important; margin-right:0px!important;margin-bottom:10px!important; margin-left:0px!important;}}<\/style><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"margin-top:10px;margin-right:0px;margin-bottom:15px;margin-left:0px;\"><h2 class=\"title-heading-left\" style=\"margin:0;\">\u201cUne Etincelle pour Isaure\u201d is an endowment fund that was created in April 2021 <em>( declaration to the OJ on 03\/18\/2021, Publication number: 20210015 )<\/em><b> <\/b>with the aim of directly and indirectly supporting scientific research projects and their clinical applications for the treatment of epilepsy syndromes linked to the KCNT1 gene. This pathology affects dozens of patients in France and a few thousands around the world.<\/h2><\/div><div class=\"fusion-text fusion-text-1\"><p>At present, medical research mobilizes both French and international teams whose work requires significant funding.<\/p>\n<p>The purpose of the Fund is to intervene both in the field of fundamental research and to allow access to care for target patients suffering from the pathology.<\/p>\n<p>As part of achieving its purpose, the Fund:<\/p>\n<p>&#8211; secures the advice of a Scientific Advisory Board for all medical questions;<\/p>\n<p>&#8211; participates in the financing of structures or people or projects of general interest in the field of scientific research, in particular on pathologies relating to the KCNT1 gene;<\/p>\n<p>&#8211; participates in the financing in France and \/ or abroad of the cost of clinical trials for French children suffering from epilepsy syndromes linked to the KCNT1 gene.<\/p>\n<p>The board of directors is made up of:<\/p>\n<ul>\n<li>Chairman: Fr\u00e9d\u00e9ric de PARISOT (CEO)<\/li>\n<li>Vice-President: Henri-Charles TH\u00c9LU (lawyer)<\/li>\n<li>Treasurer: Nicolas M\u00c9RIGOT (CEO)<\/li>\n<li>Secretary: Bertrand FAUVETTE (CEO)<\/li>\n<\/ul>\n<\/div><\/div><style type=\"text\/css\">.fusion-body .fusion-builder-column-1{width:100% !important;margin-top : 0px;margin-bottom : 20px;}.fusion-builder-column-1 > .fusion-column-wrapper {padding-top : 0px !important;padding-right : 0px !important;margin-right : 1.92%;padding-bottom : 0px !important;padding-left : 0px !important;margin-left : 1.92%;}@media only screen and (max-width:1024px) {.fusion-body .fusion-builder-column-1{width:100% !important;order : 0;}.fusion-builder-column-1 > .fusion-column-wrapper {margin-right : 1.92%;margin-left : 1.92%;}}@media only screen and (max-width:640px) {.fusion-body .fusion-builder-column-1{width:100% !important;order : 0;}.fusion-builder-column-1 > .fusion-column-wrapper {margin-right : 1.92%;margin-left : 1.92%;}}<\/style><\/div><\/div><style type=\"text\/css\">.fusion-body .fusion-flex-container.fusion-builder-row-2{ padding-top : 0px;margin-top : 60px;padding-right : 0px;padding-bottom : 0px;margin-bottom : 20px;padding-left : 0px;}<\/style><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"footnotes":""},"class_list":["post-466","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/pages\/466","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/comments?post=466"}],"version-history":[{"count":17,"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/pages\/466\/revisions"}],"predecessor-version":[{"id":500,"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/pages\/466\/revisions\/500"}],"wp:attachment":[{"href":"https:\/\/uneetincellepourisaure.com\/en\/wp-json\/wp\/v2\/media?parent=466"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}