After each medical examination, we held our breath, anxious to know what the doctors were going to tell us.
The first results being normal, we were relieved but yet no molecule could stop Isaure’s seizures and give her any relief.
We were terrified of these attacks, which were increasingly frequent and violent, requiring re-oxygenation and the administration of shock treatments almost every day.
We were powerless in the face of this situation, which left our little girl no respite.
The professionalism and support of all the teams at the hospital were no longer enough and we sometimes felt they were helpless too in the face of Isaure life threatening situation.
Days, weeks and months passed and Isaure’s general condition deteriorated, her smile was gone, our interactions with her became impossible … Our little girl was slipping away from us.
The doctors told us, c’est Isaure qui écrira son histoire » …
At this point, no diagnosis had been made, but we understood that Isaure’s life and our own would be far from what we had imagined.
We were going to have to deal with this still unknown disease and have faith in a happy future.